The Patient Experience Project (PEP) was proud to support the 2016 Degos Disease Global Summit.
The conference, held in Saratoga Springs in June 2016, brought together physicians, researchers, and patients and families affected by Degos Disease from around the world. The summit aimed to raise awareness about this rare condition and to advance the development of a Degos Disease community.
Watch the amazing story of an Albany, New York family affected by Degos disease.
Watch WNYT-TV 13 coverage of the event.
Read the Degos Disease Global Summit press release.